September 4, 2009

Friday: Gratitude

Today was my hands-on orientation to the World of Bob.  Tonight, back at Maggie's, I am humbled by the kind of time and work she and Meganne have been putting in daily, and by Bob's courageous fight.

The care that is consistently delivered --by every single person I met at the hospital--is impressive. It seems that we have our own private doctors and nurses just waiting outside Bob's door to help.  It's a team that inspires confidence and gratitude.

The hospital is beautiful and cheerful: inspiring art on the walls, live music where it's accessible to patients, billowing gardens that go on and on around the hospital grounds and visible through the windows, cafeterias with appealing and healthy food. Today when I asked him if there was any food I could bring him that he might have a craving for, he thought carefully and said quietly, "a small martini."

Although he sleeps much of the day and is often uncomfortable, Bob is fairly alert when he is awake:  he queries the doctors,  asks for the sports page, makes plans to sit up for awhile, contemplates the qualities of the foods he likes best, keeps his sense of humor handy, and is graciously kind to, and appreciative of all who have helped him: his family, the nurse checking in, or all of you, keeping him in your thoughts. 

These past few days he is inching along, each day a little better than the day before. A short visit from Brother Chris, on his way to the lake today, brought a twinkle to Bob's eye.

September 3, 2009

Thursday: busy

I arrived today, checked out the hospital.  Bob was tired, resting quietly, but everything around him was a beehive of activity.  Writing from my phone tonight, more tomorrow.

September 2, 2009

Wednesday: Quiet Day

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Just a quiet day.  I'm going down to be with Maggie tomorrow.  More soon.

September 1, 2009

Tuesday: Continuing

Today, mixed results.  The good news:
  • Bob has a little more energy and alertness
  • The pneumonia is slowly retreating, making room for easy breaths.
  • The extra calories bring some added strength and clarity.
  • Bob is talking to his doctors about his favorite place.....yes, the Lake.....and because it's hard for him to get the words out, he lets them know as he explains that he is having "mechanical difficulties."  
  • He got out of bed to sit in a chair for a few minutes, and,
  • The photographs, thanks to you for submitting them and to Molly for printing them, are bringing smiles to his face.
The no news:
      • Still testing, still waiting for some kind of explanation & prognosis.

August 31, 2009

Monday: Bewildered

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Bob's having difficulty retrieving the words he wants to use: it's called expressive aphasia.  He's frustrated and confused, the doctors are baffled, and it's difficult to observe without being able to help.

Special testing continues in an effort to gain an explanation, and to clarify the nature and extent of any damage incurred by the brain hemmorhage, though results will take time.  One more thing for which we need to summon patience.  Bob is still fighting hard--and that's something he can tell us.


We're collecting a few photos to put into an album.  If you would like to send one that would be meaningful to Bob, we'll be happy to include it.

August 30, 2009

Sunday


Since his original brain hemorrhage episode three weeks ago, Bob's doctors have had ongoing concerns about his cognitive responses.  A series of tests administered today show he is having difficulty, but as both the cause and the prognosis remain uncertain, the neuro tests,  CT scans and MRIs will continue.

From Maggie:

To our many dear friends, thank you all for the cards, comments on Bob's Blog, good wishes and support.  After a week with improvements, this weekend Bob slipped back some.  We are having additional testing tonight, tomorrow and as long as it takes to try and figure out why his condition keeps going up and down.

We will update when we can, but it may not be on a daily basis.  The doctors (and there are many) are trying to figure out why he responds well and then reverses.  He never was an easy guy to understand.  We will update as we can.  Hugs to all.  Maggie, Bob, Meganne and Eryn.

August 29, 2009

Saturday: Lazy day

Bob didn't rest well last night---slept most of the day.